Eye Exam-- check!

I took Kate to the Ophthalmologist yesterday. She has perfect vision now, which means she'll end up a bit near sighted by the time she's a teen he said. Other than that, nothing out of the ordinary.

I asked him about Irlen Syndrome (the color screens) and also Vision Therapy. In not so many words he told me it was 'bunk'. I guess I didn't expect much more from the 'establishment'. I'm not so sure he even believes dyslexia is a real condition...

But whatever, to each his own. Purple screens make the letters stop moving for her, whether it can be proven scientifically or not, whether it's on his boards or no. We'll continue doing whatever works for Kate, establishment approved or way out in left field.

Kate also had her first day working with the psychologist. I didn't go, but she said it was 'fun', and she gets prizes, so she's happy to go. For now. Who knows what she'll be like next week. On Friday, she gets tested by the speech pathologist. She's going to be very busy with all these interventions!

Home schooling is going well. We get done faster and faster each day, she seems to have accepted it. She does still balk at anything new I try to introduce, but then I remind her about the sticker policy (no smile, no sticker) and she's over it.

I'm still trying to get used to the time commitment that it is. My mornings are gone, and I miss those productive hours. Oh well. Parenting has always been inconvenient, no?

Results

Kate had another assessment with the schools psychologist today. The part where he determines her educational 'level'. No surprise, she is behind in reading, spelling, and reading comprehension. Also not a surprise to me, she has above average writing skills (not counting the spelling) and showed the same amount of hard work, and determination as last time. Her auditory comprehension is 100%.

Her IQ came in at 120. He told me this is in the 91%. So the problem is not her intelligence.

His full report will be done in a few days, and then I'll post more specifics, but basically, it proves that she does have a learning disability, because she's so smart, and yet so behind.

He's going to start working with her twice a week on some reading techniques he uses. If there is no improvement in 8-10 weeks, then we can conclude that she cannot learn the 'normal' way, and alternatives will have to be sought out. Again, on our own, since the school system has no experts in dyslexia. This will also count as another 'intervention'.

He told me he sees a lot of strengths in her that are seen in famous dyslexics, he was particularly impressed with her writing/creativity. Now I just have to figure out how to take this information and use it to find a good way to teach her to read.

She also needs the speech therapy, as it is affecting her spelling. She spells exactly as she speaks. Wylly for Really, and shis for this. He's going to make sure she gets that therapy going soon.

At home, we've started the spell-sweep method from the Gift of Dyslexia book. You say every letter in the word and then you say the word. If she does not know the word, I tell her it after she has spelled it out, and then she repeats it. ei: M-E-T-H-O-D, method. She is not to sound it out. She hates it, but I'm making her do it. We have to get her eyes tracking correctly, taking in the data in the correct order.

I also contacted an Optometrist in SLC that does Vision Therapy. Her eyes skip or jump as she tracks side to side. It's quite apparent when she is reading, and forces her to lose her place constantly. I think the VT would benefit her, but it's $280 for the initial exam/findings report, and then $120/session, with 12-16 sessions being average. That will be hard for us, so we're putting it off for a bit to see if all this other stuff will show some improvement.

She asked to go to school all day yesterday, but when I said no, she dropped it immediately. That's a relief, as that fight was getting old fast.

So... it's onward, ever onward. Press forward. The journey has just begun, and may go on indefinitely. It's nice to know she's so smart though, if only to my maternal pride, and even though I know she didn't get it from me.

*side note: When Chris was in 4th grade, they had him tested, because he was doing so poorly. He scored somewhere around 140 (from family reports, I don't have the actual results). The psychologist told his parents "Not to worry about him. He's a genius. He'll just need a good secretary." They took that information and nothing else was ever done, except he got yelled at every time he brought home a report card. I'm sure they thought that because he was so bright, he just wasn't trying hard enough. I wonder how Chris' education would have gone, had someone diagnosed him with dyslexia and got him the help he needed? How many children are repeating that same course even as I write this? *

Violet

I picked up some plastic colored sheet dividers today. We tried yellow, green, blue, orange and violet. She can't see violet apparently, because when that sheet went over her page, she said the words stopped moving around.

YAY!

So we are now reading with a violet filter. I might see if I can get her a little pair of violet colored reading glasses, but I can see her wanting them, and then never wearing them for this, that or the other reason.

Chris picked the yellow filter. Even though he doesn't see words move, he liked the yellow and said it made reading smoother. And then an hour later he changed his mind. I think I know where Kate gets her 'fickle-ness' from now...

Dyslexia

My friend Emily, is a 3rd grade teacher, has also taught 1st grade, and been the reading specialist at her school. She did her Masters Thesis on teaching methods for dyslexic and learning disabled kids, and she also has dyslexia. She read with Kate on Saturday, and feels certain that she has dyslexia. She asked her if she sees letters moving around on the page, or coming up off the page, and I was shocked to hear Kate say 'yes'. She described seeing letters move like on Electric Company, when Annie Scrambler messes up words. I had never thought to ask her this, because I didn't know that can happen in a dyslexics brain.

Emily said that dyslexics see words in 3D, looking at them from the side, from behind and from below, not just straight on. This is why their letters flip sometimes. This is also the reason why dyslexics are so spatially oriented and why they are so creative. Fascinating, isn't it?

Emily has a pair of violet reading glasses, because her brain does not see that color, and since black is a combination of all colors, the missing violet can make the letters appear to move. We need to figure out if Kate has a color problem as well, and get her a filter to read through.

She also has a speech impediment, if you remember her "wylly wylly", she can't say her 'r's. This affects how she hears and processes the sounds, and makes phonics difficult for her, especially blended sounds. So we are having the speech therapist listen to her, and she will probably have some therapy for that soon. *Sigh* I really think the way she talks is cute, and I'll be sad to 'hear' that go... but, if that is one of the things that will help her read, we have to take care of it.

Emily gave me some methods to use to help Kate. She wants me to teach her sign language. She does this in her class, because a multi-sensory approach helps so many kids, especially dyslexics. I'll also have Kate make her letters out of play-doh, draw them on my hand, or in salt, and she'll have pictures and colors associated with every sound and letter. All this will hopefully help her to learn the sounds.

She's giving me a set of textured, colored sound tiles that Kate can manipulate. In my research, I've learned that Kinesthetic approaches are especially good for dyslexics. Kate will also draw pictures to go with her sight word flash cards, and use a bookmark when reading, because she 'scoops' letters from the next line down and inserts them into her words.

Emily will check up on us once a week, and readjust our approach as we see what works and what doesn't. She also said to have her tested by the school psychologist, because that will tell us what her strengths are, as well as her disabilities, and will help us build a method specific to her gifts.

We talked to Kate about this, told her what dyslexia was, and more importantly, what it wasn't-- It does not mean that she is dumb. In fact, most dyslexics have higher than average IQ's, and have remarkable gifts. We told her she'd have to do a few more tests, and that we'd be doing her homework differently from now on. She seems ok with it all, and the promise of a treat, after any kind of testing she had to go through, hit the mark.

I hope she'll be ok. I hope her self esteem won't suffer because of this. My biggest fear is that she'll wind up thinking she's 'just not smart'.

I had an interesting conversation with Chris' mother last night. I told her about Kate, and was surprised by her reaction. She shook her head and said, "She gets that from me. I had a very hard time learning to read. I just wasn't smart." I argued that she was in fact very smart, very creative, had a head for quilting and piecing and sewing like few others, and while she agreed, she still had a very dejected attitude about her intelligence. She even listed all the 'brown-eyed grandchildren' who'd inherited it from her and had struggled in school. (One is a very intelligent chemical engineering student, one a gifted artist, and one a talented machinist, btw. They did struggle in school, but they also have gifts and talents that help them to excel in their fields.)

It made me so sad, here she is, 79 yo, and still has the feeling that she is 'not smart'. It makes me sad, mad, and determined. Determined to make sure Kate does not grow up with this attitude.

Emily warned me it is going to be a long hard road, and that it would not ever 'go away'. We'll have to deal with it for her entire life. I don't feel weighed down though, I feel optimistic. I think I can help her, I will certainly die trying anyways. I've already gotten 4 books on dyslexia that I will be studying for the next little while. Understanding is the key right?

Her teacher has also been very supportive, and so we'll keep her in school for as long as that continues to work for her. I'm not ruling out home-schooling her for at least part of the day though, if that will make it easier on her. Going to school all day, only to come home to 2 hours of homework with Mom will not make her happy I'm sure. None of my kids would go for that. I wouldn't.

So we'll just take it one day at a time. Learn to learn Kate's way by trial and error. At least she has Chris to identify with. She knows he has it too, knows he's a good reader now, and I think she knows that it's not the end of the world. It's a challenge for her to rise above. I know she'll do it.

Wish us luck.